PWSA (USA) was organized in 1975 to provide support for individuals, families, professionals and organizations and to be a resource for education and information about Prader-Willi syndrome. The organization was first headquartered in Minneapolis, then moved to St. Louis, Missouri, and then found its permanent home in Sarasota, Florida in October of 1997. The association is governed by a national board of directors. The board works in conjunction with the paid and volunteer staff of the national headquarters, and a network of chapters throughout the country to direct the organization's operations and serve its members.
